Physicians Caring for Celiac Patients do not Routinely Recommend Screening of First-Degree Family Members.

Authors

• Abhik Roy
• Colin Smith
• Constantine Daskalakis
• Kristin Voorhees
• Stephanie Moleski
• Anthony J DiMarino
• David Kastenberg

Publication/Presentation Date

12-1-2015

Abstract

AIM: Screening first-degree relatives of celiac disease (CD) patients offers an opportunity to diagnose CD in a high-risk population.This study aims to determine how frequently CD patients receive a physician-issued recommendation for first-degree relative screening.

MATERIALS AND METHODS: A 12-question survey assessing whether CD patients receive a physician recommendation to screen first-degree relatives for CD, and the impact of such a recommendation, was validated with outpatients in a university gastroenterology practice ("University"). The 12-question survey was then distributed online to members of a celiac organization - the National Foundation for Celiac Awareness ("NFCA"). Results were collected over 3 months. Univariate analysis was used to compare cohort means and assess the association between demographic and diagnostic factors and first-degree relative screening recommendations.

RESULTS: 87 University patients participated in the validation phase. Test-retest reliability of 4 key survey questions was high (Kappa coefficient > 0.80). The main analyses were based on data from 677 NFCA and 82 University respondents. Respondents were predominantly female, with a mean age of 45 years. Significantly more University patients received a recommendation for screening (78%

CONCLUSIONS: Physicians of CD patients often do not recommend screening first-degree family members. The high clinical impact of this recommendation suggests that greater physician compliance with screening may increase the diagnosis of CD in high risk individuals.

Volume

4

Issue

12

First Page

1838

Last Page

1843

ISSN

2224-3992

Published In/Presented At

Roy, A., Smith, C., Daskalakis, C., Voorhees, K., Moleski, S., DiMarino, A. J., & Kastenberg, D. (2015). Physicians Caring for Celiac Patients do not Routinely Recommend Screening of First-Degree Family Members. Journal of gastroenterology and hepatology research, 4(12), 1838–1843. https://doi.org/10.17554/j.issn.2224-3992.2015.04.585

Disciplines

Business Administration, Management, and Operations | Health and Medical Administration | Management Sciences and Quantitative Methods

PubMedID

28164022

Department(s)

Administration and Leadership

Document Type

Article