Problematic hospital experiences among adult patients with sickle cell disease.
Publication/Presentation Date
11-1-2010
Abstract
BACKGROUND: Adults with sickle cell disease (SCD) have often reported difficulties obtaining care during vaso-occlusive crisis (VOC) in qualitative studies.
METHODS: We measured the experiences of 45 SCD patients who received in-hospital care for VOC using the Picker Patient Experience Questionnaire (PPE-15), and used the one sample binomial test to compare with national norms.
RESULTS: Most SCD patients reported that they were insufficiently involved in decisions (86%), staff gave conflicting information (64%), it wasn't easy to find someone to discuss concerns (61%), doctors' answers to questions were not clear (58%), nurses' answers to questions were not clear (56%), doctors did not always discuss fears and anxieties (53%), and nurses did not always discuss fears and anxieties (52%). A greater percentage of SCD patients than the U.S. sample in 9 of 12 areas reported problems.
CONCLUSIONS: Further research is needed to determine the consequences of and potential interventions to improve these poor experiences.
Volume
21
Issue
4
First Page
1114
Last Page
1123
ISSN
1548-6869
Published In/Presented At
Lattimer, L., Haywood, C., Jr, Lanzkron, S., Ratanawongsa, N., Bediako, S. M., & Beach, M. C. (2010). Problematic hospital experiences among adult patients with sickle cell disease. Journal of health care for the poor and underserved, 21(4), 1114–1123. https://doi.org/10.1353/hpu.2010.0940
Disciplines
Business Administration, Management, and Operations | Health and Medical Administration | Management Sciences and Quantitative Methods
PubMedID
21099065
Department(s)
Administration and Leadership
Document Type
Article