Profile of the Postoperative Care Provided for Patients With Pancreatic and Periampullary Cancers by Family and Unpaid Caregivers.
Publication/Presentation Date
8-1-2023
Abstract
PURPOSE: Patients with pancreatic and periampullary cancers may experience significant reduction in their quality of life and often rely on family and unpaid caregivers for assistance after surgery. However, as caregivers are not systematically identified, little is known about the nature, difficulty, and personal demands of assistance they provide. We aim to assess the frequency and difficulty of specific assistance caregivers provide and identify potential interventions that could alleviate the caregiving demands.
METHODS: This was a prospective, multi-institutional study of caregivers accompanying patients with periampullary and pancreatic cancer at their 1-month postpancreatectomy office visit. An instrument that drew heavily on the National Study of Caregiving was administered to caregivers.
RESULTS: Of 240 caregivers, more than half (58.3%) of caregivers were the patients' spouse, a quarter (25.8%) were daughters or sons, 12.9% other relatives, and 2.9% nonrelatives. Caregivers least frequently provided assistance with transportation (14.6% every day) and most frequently provided assistance with housework (65.0% every day,
CONCLUSION: Caregivers of patients with periampullary or pancreatic cancer provide considerable assistance in the postoperative period and many reported difficulty in assisting with housework and diet. Work is needed to better prepare and support caregivers to better enable them to adequately care for patients with pancreas and periampullary cancer.
Volume
19
Issue
8
First Page
551
Last Page
559
ISSN
2688-1535
Published In/Presented At
Fong, Z. V., Teinor, J., Yeo, T. P., Rinaldi, D., Greer, J. B., Lavu, H., Qadan, M., Johnston, F. M., Ferrone, C. R., Chang, D. C., Yeo, C. J., Wolfgang, C. L., Warshaw, A. L., Lillemoe, K. D., Fernandez-Del Castillo, C., Wolff, J. L., Wu, A. W., & Weiss, M. J. (2023). Profile of the Postoperative Care Provided for Patients With Pancreatic and Periampullary Cancers by Family and Unpaid Caregivers. JCO oncology practice, 19(8), 551–559. https://doi.org/10.1200/OP.22.00736
Disciplines
Business Administration, Management, and Operations | Health and Medical Administration | Management Sciences and Quantitative Methods
PubMedID
37192429
Department(s)
Administration and Leadership
Document Type
Article