Patients' understanding of disease status and treatment plan at initial hematopoietic stem cell transplantation consultation.
Publication/Presentation Date
3-1-2006
Abstract
Patients referred for hematopoietic stem cell transplantation (HSCT) often have knowledge deficits about their disease and overestimate their prognosis making it difficult initially to discuss potentially life-threatening transplant options. To determine patients' understanding of their disease and the adequacy of a 3-h consultation at our center, we developed a survey that measured perceived knowledge deficits of disease, prognosis, and emotional status before and after their initial consultation. Ninety nine consecutive eligible patients completed the survey. Although 76.7% claimed adequate information about their disease pre-HCST visit, 51.5 and 41.4% respectively lacked knowledge about their 1-year prognosis with and without any therapy. After the visit, 66.7% of the patients had obtained enough information to make an informed decision regarding HSCT versus 23.2% pre-visit, and a significant reduction in the need for further information was reported by 53.5% of patients (P
Volume
37
Issue
5
First Page
479
Last Page
484
ISSN
0268-3369
Published In/Presented At
Stiff, P. J., Miller, L. A., Mumby, P., Kiley, K., Batiste, R., Porter, N., Potocki, K., Volle, M., Lichtenstein, S., Wojtowicz, S., Zakrzewski, S., Toor, A., & Rodriguez, T. (2006). Patients' understanding of disease status and treatment plan at initial hematopoietic stem cell transplantation consultation. Bone marrow transplantation, 37(5), 479–484. https://doi.org/10.1038/sj.bmt.1705264
Disciplines
Medicine and Health Sciences
PubMedID
16435021
Department(s)
Department of Medicine, Hematology-Medical Oncology Division
Document Type
Article