Implementation and outcomes of telephone disclosure of clinical BRCA1/2 test results.
Publication/Presentation Date
12-1-2013
Abstract
OBJECTIVES: With an increasing demand for genetic services, effective and efficient delivery models for genetic testing are needed.
METHODS: In this prospective single-arm communication study, participants received clinical BRCA1/2 results by telephone with a genetic counselor and completed surveys at baseline, after telephone disclosure (TD) and after in-person clinical follow-up.
RESULTS: Sixty percent of women agreed to participate; 73% of decliners preferred in-person communication. Anxiety decreased from baseline to post-TD (p=0.03) and satisfaction increased (p
CONCLUSIONS: Telephone disclosure of BRCA1/2 test results may not be associated with negative cognitive and affective responses among willing patients, although some subgroups may experience less favorable responses. Some patients do not return for in-person clinical follow-up and longitudinal outcomes are unknown.
PRACTICE IMPLICATIONS: Further evaluation of longitudinal outcomes of telephone disclosure and differences among subgroups can inform how to best incorporate telephone communication into delivery of genetic services.
Volume
93
Issue
3
First Page
413
Last Page
419
ISSN
1873-5134
Published In/Presented At
Patrick-Miller, L., Egleston, B. L., Daly, M., Stevens, E., Fetzer, D., Forman, A., Bealin, L., Rybak, C., Peterson, C., Corbman, M., & Bradbury, A. R. (2013). Implementation and outcomes of telephone disclosure of clinical BRCA1/2 test results. Patient education and counseling, 93(3), 413–419. https://doi.org/10.1016/j.pec.2013.08.009
Disciplines
Medicine and Health Sciences
PubMedID
24075727
Department(s)
Department of Medicine
Document Type
Article