USF-LVHN SELECT
Recall of Genomic Testing Results Among Patients with Cancer.
Publication/Presentation Date
12-1-2021
Abstract
BACKGROUND: Genomic testing of somatic and germline DNA has transformed cancer care. However, low genetic knowledge among patients may compromise care and health outcomes. Given the rise in genomic testing, we sought to understand patients' knowledge of their genetic test results.
MATERIALS AND METHODS: We conducted a survey-based study with 85 patients at a comprehensive cancer center. We compared self-reported recall of (a) having had somatic/germline testing and (b) their specific somatic/germline results to the genomic test results documented in the medical record.
RESULTS: Approximately 30% of patients did not recall having had testing. Of those who recalled having testing, 44% of patients with pathogenic/likely pathogenic germline mutations and 57% of patients with reported somatic alterations did not accurately recall their specific gene or variant-level results.
CONCLUSION: Given significant knowledge gaps in patients' recall of genomic testing, there is a critical need to improve patient-directed education and return-of-results strategies.
Volume
26
Issue
12
First Page
2302
Last Page
2302
ISSN
1549-490X
Published In/Presented At
Wing, S. E., Hu, H., Lopez, L., Solomon, I., Shen, J., Raquel, C., Sur, M., Chao, J., Cristea, M., Fakih, M., Mortimer, J., Pal, S., Reckamp, K., Yuan, Y., & Gray, S. W. (2021). Recall of Genomic Testing Results Among Patients with Cancer. The oncologist, 26(12), e2302–e2305. https://doi.org/10.1002/onco.13928
Disciplines
Medical Education | Medicine and Health Sciences
PubMedID
34355454
Department(s)
USF-LVHN SELECT Program, USF-LVHN SELECT Program Students
Document Type
Article