Bursting the Information Bubble: Identifying Opportunities for Pediatric Patient-Centered Technology.
Publication/Presentation Date
1-1-2016
Abstract
Although hospital care is carefully documented and that information is electronically available to clinicians, few information systems exist for patients and their families to use while they are in the hospital. Information often appears trapped within the hospital room. In this paper, we present findings from three participatory design sessions that we conducted with former patients, their parents, and clinicians from a large children's hospital. Participants discussed challenges they faced getting information while in the hospital, and then designed possible technological solutions. Participants designed technologies aimed at extending parents' access to and involvement in patients' care. Their designs showed opportunities for health informatics within and beyond the children's hospital room: to allow parents and children to disseminate information from within, access information from the hospital room remotely, establish pervasive and collaborative communication with the clinical care team, and learn about their child's care throughout the hospital stay.
Volume
2016
First Page
894
Last Page
903
ISSN
1942-597X
Published In/Presented At
Miller, A. D., Pollack, A. H., & Pratt, W. (2016). Bursting the Information Bubble: Identifying Opportunities for Pediatric Patient-Centered Technology. AMIA Annual Symposium Proceedings, 2016, 894–903.
Disciplines
Medicine and Health Sciences | Pediatrics
PubMedID
28269886
Department(s)
Department of Pediatrics
Document Type
Article